Lucy

I am a parent of a child with additional needs. I am also the co‑founder of My Penelope , a digital tool built to help parents navigate the SEND system, keep track of provision, and avoid falling through the cracks. I live in both worlds every day: the emotional reality of parenting a child with significant needs, and the systemic reality of trying to make a failing SEND system work. That is why I am deeply concerned by the direction of travel in the current SEND reform proposals . Monday’s...

Every year, Purple Day invites the epilepsy community to pause, reflect and reconnect. It is a chance to remind ourselves—and the world—that while epilepsy may shape parts of our lives, it does not define our potential. This year’s theme, “If I can, you can,” resonates deeply with me. Over the last year, as we’ve learned more about Penny’s epilepsy, her medication, and its impact on her daily life, I’ve found myself reflecting—really reflecting—on my own journey. A Childhood of Seizures and...

Hear Her Voice: Reflections from me A couple of weeks ago I attended Hear Her Voice, an event hosted by Young Epilepsy for International Women’s Day. It brought together mothers, daughters, clinicians and young people to shine a light on what it truly means to live with epilepsy. For me, it hit differently. As our followers know, I’m a mum to a five-year-old with epilepsy, cerebral palsy and autism. Her seizures are uncontrolled — we typically track between 11 and 15 each week, and those are...