Advice & Articles

An honest start. It has been a couple of weeks since I last wrote a blog. There are a few reasons for that. We are working hard to get the My Penelope app out and released. We are in the middle of the Christmas period. There have been hospital appointments to juggle. Mostly though, I have been managing life and managing Penelope, and there has not been much space left for anything else. This blog is an honest view of Christmas and, heartbreakingly, how it is changing for us.

A Father’s Raw and Honest Reflection on Loving a Child With Cerebral Palsy, Epilepsy and Autism. When Family Life Begins to Break Under the Weight There’s a kind of exhaustion that lives deep in your bones when you’re raising a child with additional needs — the kind few people ever truly see. It’s not just tiredness. It’s emotional heaviness, fear, responsibility, guilt, hope, frustration, and heartbreak all layered on top of one another. If I’m honest, lately we haven’t felt

The Early Days: Lost in the Unknown When your child is first diagnosed with something life-changing, it feels like the world stops moving — and yet, somehow, you have to keep going. When Penelope was born, we had no idea the journey that lay ahead. We knew love — the kind that fills your lungs and makes you fight for every small milestone — but we didn’t yet know how much strength that love would demand. Those first few months after her diagnosis were filled with questions. E