Ashley

The problem nobody talks about: parents are expected to remember everything. If you are raising a child with additional needs, you already know this feeling. You walk into an appointment and someone asks: How has sleep been? How many seizures? How often are meltdowns happening? Is school affecting behaviour? Is medication helping? And you want to answer properly, because your child’s care depends on it. But your head is full. You are tired. You are juggling work, siblings, school runs, and a...

A weekend of reflection, and a wake-up call. This weekend has felt like a time for reflection and, in many ways, a wake-up call. I have reached a milestone birthday, and although it has been a lovely celebration with my children, it naturally makes you stop and look at your life more closely. It makes you think about what matters, what needs to change, and what simply cannot be ignored any longer. On Friday, after Lucy attended the Hear Her Voice event in London with Young Epilepsy, we sat...

An honest start. It has been a couple of weeks since I last wrote a blog. There are a few reasons for that. We are working hard to get the My Penelope app out and released. We are in the middle of the Christmas period. There have been hospital appointments to juggle. Mostly though, I have been managing life and managing Penelope, and there has not been much space left for anything else. This blog is an honest view of Christmas and, heartbreakingly, how it is changing for us. Each year it...