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Lucy

Lucy

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Mother/ Co-founder

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Join date: Jun 23, 2025

Posts (10)

Jan 29, 20264 min
Why the Children’s Wellbeing and Schools Bill Raises Serious Concerns for Children With Additional Needs
The Children’s Wellbeing and Schools Bill has been presented as a major reform to improve safeguarding, strengthen attendance, and enhance support for vulnerable pupils. However, for families of children with complex additional needs — including those with Education, Health and Care (EHC) plans, disabilities, chronic illnesses, or mental-health challenges — the Bill introduces provisions that could create significant new risks, barriers, and unintended harm. Based on a detailed review of the...

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Jan 13, 20265 min
Epilepsy and Us.
What it looks like before you have a diagnosis, and why trusting your instincts matters. Before we had words for it We finally met with Penelope’s neurologist last week. Our pre-Christmas appointment had been cancelled due to sickness and rescheduled for January. Even the snow tried to stop us attending, but we insisted on a face-to-face appointment. It felt important — not just clinically, but personally — to meet the doctor who would be responsible for our daughter’s care. From a parenting...

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Nov 13, 20254 min
When Attendance Targets Trump Inclusion: The Unseen Impact on SEN Families.
When Attendance Becomes More Important Than Access On 12 November 2025 , the Education Secretary announced a new “Roadmap to Improve Attendance Levels” — a sweeping national plan to drive up school attendance and “restore absence to pre-pandemic levels.” On paper, it sounds positive: getting children re-engaged with education, providing breakfast clubs, mentoring, and data-driven support.But for families like ours — parents of children with special educational needs (SEN) — the reality is...

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