EHCP'S

The problem nobody talks about: parents are expected to remember everything. If you are raising a child with additional needs, you already know this feeling. You walk into an appointment and someone asks: How has sleep been? How many seizures? How often are meltdowns happening? Is school affecting behaviour? Is medication helping? And you want to answer properly, because your child’s care depends on it. But your head is full. You are tired. You are juggling work, siblings, sc

A weekend of reflection, and a wake-up call. This weekend has felt like a time for reflection and, in many ways, a wake-up call. I have reached a milestone birthday, and although it has been a lovely celebration with my children, it naturally makes you stop and look at your life more closely. It makes you think about what matters, what needs to change, and what simply cannot be ignored any longer. On Friday, after Lucy attended the Hear Her Voice event in London with Young Ep

The Children’s Wellbeing and Schools Bill has been presented as a major reform to improve safeguarding, strengthen attendance, and enhance support for vulnerable pupils. However, for families of children with complex additional needs — including those with Education, Health and Care (EHC) plans, disabilities, chronic illnesses, or mental-health challenges — the Bill introduces provisions that could create significant new risks, barriers, and unintended harm. Based on a detail

Calm, practical steps for parents when a child has a seizure — and what to record afterward to help clinicians. Emergency advice included.

What is an Education, Health and Care Plan (EHCP)? This practical guide explains who it’s for, what it contains, how to apply, and how to use My Penelope to gather evidence.