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When the World Stood Still: Our Journey to Penny’s Cerebral Palsy Diagnosis.
Life Between Lockdowns: The Calm Before the Storm. After Penny was born, everything felt calm — eerily calm. She arrived between lockdowns, in a world where joy was muted and connections were made through screens. Friends and family met her over Zoom, and though it was strange, I secretly loved it. She was ours. The world outside was chaotic, but inside our little bubble, it was just us — cocooned, protected, learning this new rhythm of life. The Early Days: Endless Crying an

Lucy
Nov 10


Our Daughter’s Diagnosis — A Dad’s Perspective
When Words Don’t Come Easily I’ve wanted to write this for a long time. But as any parent knows, finding the time and more importantly, the mental space to unpack everything life throws at you can feel impossible. And as a man, writing about emotions — about fear, helplessness, love, and guilt — doesn’t come naturally. We're not raised to talk about what’s going on inside. We’re raised to handle it . To fix things, hold it together, and not let anyone see the cracks. But wh

Ashley
Oct 19


Penny’s Birth Story: Strength, Uncertainty, and Love in the Summer of Lockdown.
Penny's Birth Story When I think back to Penny's arrival, it’s impossible to separate her birth story from the strange, uncertain world...

Lucy
Oct 10


What to Do When Your Child Has a Seizure.
Calm, practical steps for parents when a child has a seizure — and what to record afterward to help clinicians. Emergency advice included.

Lucy
Sep 30


What is an EHCP? A Parent’s Guide
What is an Education, Health and Care Plan (EHCP)? This practical guide explains who it’s for, what it contains, how to apply, and how to use My Penelope to gather evidence.

Ashley
Sep 29
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